{"id":4444,"date":"2012-03-02T10:00:43","date_gmt":"2012-03-02T17:00:43","guid":{"rendered":"http:\/\/www.mlgsca.mlanet.org\/newsletter\/?p=4444"},"modified":"2012-02-28T11:34:42","modified_gmt":"2012-02-28T18:34:42","slug":"virtual-poster-2-x-linked-agammaglobulinemia-marks-the-spot-rare-diseases-in-evidence-based-practice","status":"publish","type":"post","link":"http:\/\/www.mlgsca.mlanet.org\/newsletter\/?p=4444","title":{"rendered":"Virtual Poster 2: X-Linked Agammaglobulinemia Marks The Spot: Rare Diseases in Evidence-Based Practice"},"content":{"rendered":"<p><a href=\"http:\/\/www.mlgsca.mlanet.org\/newsletter\/wp-content\/uploads\/2012\/02\/tagawaposter.png\"><img decoding=\"async\" class=\"alignleft size-full wp-image-4446\" title=\"tagawaposter\" src=\"http:\/\/www.mlgsca.mlanet.org\/newsletter\/wp-content\/uploads\/2012\/02\/tagawaposter.png\" alt=\"\" width=\"480\" height=\"350\" \/><\/a><\/p>\n<p>Lori Tagawa, ltagawa@library.ucla.edu<br \/>\nCommunity Outreach Coordinator, National Network of Libraries of Medicine, Pacific Southwest Region<\/p>\n<p>Evidence-based practice is \u201cthe conscientious, explicit, and judicious use of current best evidence in making decisions about the care of individual patients\u201d (Sackett 1996). Under normal circumstances, evidence-based practice can be easily utilized. However, difficulties arise when seeking best practice for a rare disease, a disease that affects less than 200,000 Americans. It is often complicated to perform controlled clinical trials with such a small population and in some instances a rare disease\u2019s best practice may lie in sporadic case reports. An individual rare disease may have little impact, but collectively there are nearly 7,000 identified rare diseases that affect 25-30 million Americans and even more worldwide. This poster will briefly explore the complicated relationship between rare diseases and evidence-based practice and will provide search strategies and resources for medical librarians seeking information on rare diseases. <\/p>\n<p>Download the full-size PDF of Lori Tagawa&#8217;s poster,\u00a0 <a href=\"http:\/\/www.mlgsca.mlanet.org\/newsletter\/wp-content\/uploads\/2012\/02\/X-Linked-Agammaglobulinemia-Marks-the-Spot.pdf\">X-Linked Agammaglobulinemia Marks the Spot: Rare Diseases in Evidence-Based Practice.<\/a><\/p>\n<p>Poster content is copyrighted by author(s). Contact the poster author(s) if you would like to re-publish or re-use their work.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Lori Tagawa, ltagawa@library.ucla.edu Community Outreach Coordinator, National Network of Libraries of Medicine, Pacific Southwest Region Evidence-based practice is \u201cthe conscientious, explicit, and judicious use of current best evidence in making decisions about the care of individual patients\u201d (Sackett 1996). Under normal circumstances, evidence-based practice can be easily utilized. However, difficulties arise when seeking best practice [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[124,126,21],"tags":[],"_links":{"self":[{"href":"http:\/\/www.mlgsca.mlanet.org\/newsletter\/index.php?rest_route=\/wp\/v2\/posts\/4444"}],"collection":[{"href":"http:\/\/www.mlgsca.mlanet.org\/newsletter\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.mlgsca.mlanet.org\/newsletter\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.mlgsca.mlanet.org\/newsletter\/index.php?rest_route=\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"http:\/\/www.mlgsca.mlanet.org\/newsletter\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=4444"}],"version-history":[{"count":9,"href":"http:\/\/www.mlgsca.mlanet.org\/newsletter\/index.php?rest_route=\/wp\/v2\/posts\/4444\/revisions"}],"predecessor-version":[{"id":4574,"href":"http:\/\/www.mlgsca.mlanet.org\/newsletter\/index.php?rest_route=\/wp\/v2\/posts\/4444\/revisions\/4574"}],"wp:attachment":[{"href":"http:\/\/www.mlgsca.mlanet.org\/newsletter\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=4444"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.mlgsca.mlanet.org\/newsletter\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=4444"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.mlgsca.mlanet.org\/newsletter\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=4444"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}